Dementia: Information for family and friends | What You Need To Know (bitesize)

How To Help People With Dementia Live Independently

Daniel Esteve

How To Help People With Dementia Live Independently

15/10/2019




 

     

    What I liked about this Help Sheet: 

    • The stress levels go through the roof when I care about my loved one AND there are other people around, including family and friends.  I often send them the link (above) to try to make them a bit more aware of what is going on.  It is not so much for their benefit but…for mine!    It also helps when they come in and do not add to the general confusion and stress by bringing their issues.
       

    Key points I extracted from this Help Sheet: 

    • My mother, our mother, is not going mad, she is ill. 
    • It is going to get worse, so let’s act now the way we mean to behave always (Does that make sense?) 
    • We’re all here to bridge the gaps of understanding or memory for our loved one.  If you want to judge, you are on the wrong trip. 
    • We’re a family, we can deal if decorum is affected or if social boundaries are crossed. 
    • Don’t bring in your experience with someone else who has dementia.  Our mother is unique and behaves in her own unique way.  There are no experts in our mother. 
    • Do sit next to her and talk.  Do not offer open ended questions but push forward choices: Do you prefer this pasta or this chicken? Do you prefer this son or that daughter? 
    • Engage with activities (gardening) and offer visual options for action. No open-ended task.  Do you want to burry him with this spade or paint him first with this paint brush?  
    • You are having a bad day?  You have no idea how bad a day our mother is having every single day.  Get over yourself. 
    • Let’s get the sound down everyone!  Question?  Use your feet, go to the person and ask.  Do not shout out questions. 
    • Smile… when you need to because something makes you smile.  Do not always approach your loved one with a smile, it is creepy! 

    What I do: 

    • I never assume they know how to behave around my mother.  I bully them if need be.  Makes my mother’s life easier, and mine easier too! 

    Author of this blog (Transparency):   

    • I work for CPR Global Tech and, for personal reasons, like many people, I have had to learn a lot about dementia the hard way.  As there is a natural forum on our website, it makes sense for me to share info here.  

    More on this subject:

     

    Source: https://www.dementia.org.au/files/helpsheets/Helpsheet-AboutDementia04-InformationForFamilyAndFriends_english.pdf 


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    Dementia: Information for family and friends | What You Need To Know (bitesize)

    Avatar

    by Daniel Esteve

    Avatar

    15/10/2019



     

       

      What I liked about this Help Sheet: 

      • The stress levels go through the roof when I care about my loved one AND there are other people around, including family and friends.  I often send them the link (above) to try to make them a bit more aware of what is going on.  It is not so much for their benefit but…for mine!    It also helps when they come in and do not add to the general confusion and stress by bringing their issues.
         

      Key points I extracted from this Help Sheet: 

      • My mother, our mother, is not going mad, she is ill. 
      • It is going to get worse, so let’s act now the way we mean to behave always (Does that make sense?) 
      • We’re all here to bridge the gaps of understanding or memory for our loved one.  If you want to judge, you are on the wrong trip. 
      • We’re a family, we can deal if decorum is affected or if social boundaries are crossed. 
      • Don’t bring in your experience with someone else who has dementia.  Our mother is unique and behaves in her own unique way.  There are no experts in our mother. 
      • Do sit next to her and talk.  Do not offer open ended questions but push forward choices: Do you prefer this pasta or this chicken? Do you prefer this son or that daughter? 
      • Engage with activities (gardening) and offer visual options for action. No open-ended task.  Do you want to burry him with this spade or paint him first with this paint brush?  
      • You are having a bad day?  You have no idea how bad a day our mother is having every single day.  Get over yourself. 
      • Let’s get the sound down everyone!  Question?  Use your feet, go to the person and ask.  Do not shout out questions. 
      • Smile… when you need to because something makes you smile.  Do not always approach your loved one with a smile, it is creepy! 

      What I do: 

      • I never assume they know how to behave around my mother.  I bully them if need be.  Makes my mother’s life easier, and mine easier too! 

      Author of this blog (Transparency):   

      • I work for CPR Global Tech and, for personal reasons, like many people, I have had to learn a lot about dementia the hard way.  As there is a natural forum on our website, it makes sense for me to share info here.  

      More on this subject:

       

      Source: https://www.dementia.org.au/files/helpsheets/Helpsheet-AboutDementia04-InformationForFamilyAndFriends_english.pdf 


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